Saturday, January 31, 2009

Home again, Home again

 I guess we should have updated this already...Berkeley got to come home from the hospital almost 2 weeks ago! Brighton is especially happy to have her home. She wakes up each morning saying, "I want to see my sister!" and then countless times throughout the day says, "I love my sister!" Berkeley has her own personal cheerleader. I feel like that is such a gift from God.
The doctors want her to have plenty of time to fully recover from pneumonia, so they would like to schedule her heart surgery for early March. We'll have a date within a few weeks. I'm ready to get that over with, but at the same time it makes me nervous. Now that Berkeley is a little older and began to smile, laugh, and coo, I feel like I know her so much better now...which makes it harder to think of her having open-heart surgery. But I'm still happy that her heart problem is fixable!
MANY THANKS to those of you who prayed, visited, brought food, or encouraged us in other ways. We are amazed by the wonderful people the Lord has put in our lives!
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Saturday, January 10, 2009

Breathe Deep

 


Well, it's been a long week. And we're not out of the woods yet. Berkeley is still hanging out at Children's Medical Center in Dallas. She's becoming quite a celebrity, getting to know just about every doctor, nurse, and respiratory technician in the pediatrics wing of the hospital. She and I have outlasted several shifts of doctors and nurses and now she's working on the weekend crew with her mom. I'm taking a break and sleeping at home for a night or two while Julie gets to spend some more time with Berkeley.

Monday night when we went in, I told Berkeley that there were cheaper ways to get a daddy/daughter date. Yesterday, I told her she's bumped that up to a daddy/daughter vacation. The good news is that there's a reasonable chance her upcoming heart surgery could be totally free. We might tap out our insurance deductible this week instead. Heh.

But everyone really wants to know how she's doing. The short answer is she's doing pretty well actually. The antibiotics have been very effective in dealing with her pneumonia (it's more fun to say if you don't make the P silent). Everyone that's checked her out over the past three days has commented that her lungs and airways are sounding much better, and x-rays of her lungs confirm all of that. The one issue that's keeping her in the hospital is her breathing. She is simply not getting enough oxygen saturation in her blood. She's been hooked up on an oxygen tube since Monday night, and we just can't seem to get her to level out and breathe well enough on her own to totally come off of the oxygen yet. When she finally does come off of the oxygen and is stablized on her own, she'll still have to go through a 24-hour observation period before they send her home.

So what originally looked like a quick trip to the referral care clinic on Monday evening and then turned into a slumber party that we thought would end the next day has managed to stretch on for a week now. They're trying a new breathing treatment on her as of yesterday evening. I went online and read a 6 page journal entry in the Pediatrics journal for medical professionals while the doctor and respiratory technician argued over whether she needed a low flow or high flow heated cannula for this method. I was able to support the viewpoint of the respiratory tech after studying up on the issue. They asked if I was in the medical profession. I told them that I wasn't but that I was really good with Google. I felt like I was in one of those Holiday Inn commercials.

So anyway, Berkeley is still getting better each day, and I'm learning more than I ever cared to learn about respiratory problems and treatments. Hopefully we'll all get to go home soon. Thank you all for the prayers and well wishes. Please keep praying that Berkeley will breathe more deeply on her own and that her oxygen levels will ... well, level out.
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Thursday, January 8, 2009

Every smile is a gift

"A cheerful look brings joy to the heart, and good news gives health to the bones."
Proverbs 15:30

Berkeley's smiles can always make my day. But today's smiles were even more special, because they were an answered prayer. I told Sean, "be sure to tell me if she smiles today, because I prayed that she would feel good enough to smile!"
She hadn't been feeling good enough to smile or even interact much at all, and she had a pretty rough morning. I was relieved when Sean reported that she was alert for 2 hours and gave him some good smiles this afternoon. When I got to the hospital after school, she made my day with a sweet little smile just for mommy! Thank God for that little bit of encouragement!

The verse at the top took on a different meaning. I'd always thought of it as the one with the cheerful look having joy in their own heart. Now that I'm a mom, I know how much the expression of someone you love can affect your heart.

I hope to have more good news to share with you soon!

Wednesday, January 7, 2009

Prayers for Berkeley


Berkeley is sleeping peacefully with her teddy bear right now...unfortunately, she's not at home but at the Children's Hospital in Dallas. Sean took her to their ER on Monday night with a high fever, and they decided to keep her. She has pneumonia in several places in her lungs and is having some trouble with her respiration rate and blood oxygen level. They want to keep her for a few more days to make sure she is getting better. She's a real trooper, though, putting up with a lot of poking, prodding, and a gazillion different wires and tubes.

Brighton has gotten to visit her once, but she misses her little sister! Brighton loves Berkeley so much, and usually starts each day with an adorable "good muw-ning Buw-kley." Another favorite greeting is to give Berkeley a kiss on the forehead and an excited "hi sweetie!" We are so blessed to have a 2 year old that adores her baby sister. I told her that's a good thing, because Berkeley will need her to watch out for her, cheer her on, and give her LOTS of love.

We would love for you to pray for Berkeley specifically as she recovers - that the pneumonia will clear out, that her breathing rate will go back to normal, that her blood oxygen level can stay above 90% without having to be on oxygen.

Thursday, December 4, 2008

The Long Day: Autumn

Man autumn was a long day! Seems like we went from September to one exhausting long day and then BOOM ... winter time. October and November are just a blur. And now it's cold, even in Texas. It was 34 degrees here last night, and bundling up the girls this morning for the mad dash from the garage door to the already-warming car was a reminder that winter has arrived. So what in the world happened to fall? Or, for the sake of this blog, what in the world happened to the Smith family for the past two months?

Well, our blog posting took a hit in October, because October totally surprised us with its complexity and outright difficulty this year. Julie started back to school, and that turned out to be a very stressful situation for a little while. She's at a new school this year, and although the kids are really great, it's always a challenge to start somewhere new, especially when you're starting a month after the school year kicks off and coming off of a lengthy maternity break. So that presented a lot of challenges for our whole family. Also, Julie's new school is on the way to my office, so we now carpool. Getting both girls dressed and ready, getting ourselves ready, and getting all of us out the door in time to drop off the girls and then get Julie to her school on time has made seismic changes to our morning schedules.

On top of the school stress, there was the added stress of many new doctor visits and check-ups and therapist sessions for Berkeley. We sort of ramped up in October and November on all of that stuff but have settled back down for now. Of course, we'll ramp back up for surgery sometime in January. All of those doctor visits have to be coordinated with time off from work for either Julie or myself, so that has added some degree of scheduling stress for us. We're getting better and balancing all of that, though.

And then we also have had a few holidays/events to deal with in the past two months. Halloween was greatness. Brighton was a duck this year, and Berkeley was a chili pepper. No, we didn't do the thing where all the kids match each other somehow. Duck. Chili pepper. That was it.

We had a funeral to attend, as well. One of our very good friends from church, a wonderful lady named Bobbie, passed away after a fairly brief but difficult battle with cancer. Brighton loved Bobbie and prayed for her every day, saying, "Help Bobbie feel better." Toward the end of Bobbie's life I sat down and chatted with Brighton about death and what all it meant. Trying to explain that in a two year-old way of thinking is not so easy. I told her that Bobbie would be going to live with Jesus in Heaven and that we wouldn't see her for a long time, until we went to live with Jesus in Heaven, too. On the morning after Bobbie passed away, I pulled Brighton up and sat her in my lap and explained to her that Bobbie had died. Brighton looked at me very seriously for a few seconds and then asked, "Bobbie way better now?" I laughed, wiped a tear away and told her "Yes. Bobbie's way better now." That was one of those moments I'm sure I'll never ever forget.

Election day was a pretty good Brighton moment, too. I had explained the day before what election day was and how we get to choose who our president is. I even tried to tell her a little bit about the candidates: their names, their parties, and some basic positions on issues. I told her I liked McCain's tax plan and national security credentials a lot better but that Obama was a very dynamic leader who seemed to have a lot of momentum. I mostly was just talking at her, not really to her. When I stopped for a minute and asked her what the next day was called, I was expecting her to say "Election Day." She said "Obama." I had a feeling right then that McCain was sunk. After the results came in, and I told her that Obama was our new president, she asked if I was going to see him. "See who?" I said. "Go see Obama," she answered. I then had to dissapoint my daughter and let her know that daddy isn't on the president's guest list for any upcoming parties or events. I'm such a loser. :(

Okay, so then Thanksgiving came around. This year, I provided the turkey for the Austin, TX side of the family. Me being the gourmet cook that I am, I ordered a smoked-to-perfection turkey from Mike Anderson's BBQ here in Dallas and took it down with us for Thanksgiving. It was pretty darn good, too. Thanksgiving all around was great this year. Brighton got to play with her cousins for a few solid days, and a lot of our family got to see and hold Berkeley for the first time. The only downer at vacation this year was my Tigers getting beat by those Razorbacks. What a horrid year for LSU this has been.

Okay, so we're roughly caught up to date here. Sure, a LOT more happened in the past two months, but the gist of it is that we really just got sort of overwhelmed by our own schedules in October and are only now beginning to find a pretty good balance with all of that. And with balance comes blog postings. We should be able to update again at a semi-regular pace. I'm sure Berkeley's heart surgery with throw us into a tailspin again in late January, but we'll try to get in some stories and pictures between now and then and just cross that bridge when we get to it.

Sunday, November 2, 2008

Chili pepper and Duck head



Our little Chili Pepper is doing great! We had a big round of doctors visits last week, so I'll give a quick update. Berkeley had her 2 month check up and got her shots, then we rushed over to the Scottish Rite hospital the same day to have her hips and her hand checked out. The x-ray of her hips looked perfect, they said. Her hand, in case you don't know, has two shortened fingers and one finger that has no joint and can't bend. They said that she would be fine, and would just learn to compensate. So, there are two doctors we get to check off of our list and don't have to follow up with. Her last cardiologist visit went well, too. They said her oxygen levels were great and they didn't even need to do an ultrasound. She has been so much more alert lately and being a really sweet little "sugar lump" as Sean calls her.

Duck Head (Brighton) has been quite a character lately. She's definitely in her independent stage right now. She keeps us laughing, though. The other morning she said she wanted to eat dinner. I said, "We don't eat dinner in the morning. What meal do we eat in the morning?" She proudly announced, "Oat-meal!" (Get it, oat-MEAL???)

Never a dull moment around here!